The death of a baby is not a rare
event. It can happen to anyone. Every year, thousands of people in the UK are
affected by the death of a baby or experience pregnancy loss.
The Baby Loss Awareness Week is an
opportunity for parents, their families and friends to acknowledge and remember
their precious babies who have died. It is led by Sands (Stillborn and Neonatal
death charity) in collaboration with 70 charities in the UK.
Throughout the week bereaved parents,
their families and friends, unite with each other and others across the world
to commemorate the lives of babies who died during pregnancy, at or soon after
birth and in infancy. Baby Loss Awareness Week is also a platform to call for
tangible improvements in research, care and policy around bereavement support
and highlights bereavement support and services available for anyone affected
by the death of a baby at any stage.
For more information surrounding
pregnancy loss or infant death, please visit the SANDS website:
RELATED LIBRARY
RESOURCES
For anyone studying the importance of
improving both the awareness and knowledge of and supporting those who have
suffered from pregnancy loss or infant death, the Health Libraries both at the
Royal Stoke and County Hospitals offer numerous resources related to the
subject. In the lists below you’ll find a variety of items as well as
information on materials recently added to our collection and available
periodicals. To locate these items, simply go to our online catalogue or ask at the counter.
BOOKS:
- Ask me his name : learning to live and laugh again after the loss of my baby : a mother's story of hope / Elle Wright, 2019 [London : Lagom]
- Joshua's
story : uncovering the Morecambe Bay NHS scandal / James Titcombe, 2015 [Leeds :
Anderson Wallace Publishing]
- When
a meeting is also farewell : coping with a stillbirth or neonatal death / Ingela Rådestad, 1999 [Hale: Books
for Midwives]
- Freddie
: a diary of a cot death / Sarah Key, 1991 [London : Heinemann]
- Loss
and bereavement in childbearing / Rosemary Mander, 2006; 2nd ed [London: Routledge] Keele and NHS e-book available.
- Pregnancy
loss and the death of a baby : guidelines for professionals / Hunter, Amanda, editor; Stillbirth
& Neonatal Death Charity, 2016; 4th ed. [Coventry : Tantamount Press]
- When
a baby dies : the experience of late miscarriage, stillbirth, and neonatal
death / Nancy Kohner; Alix Henley, 2001; Rev. ed [London: Routledge]
JOURNALS:
- Journal of Physiology : London Physiological Society [Available as a Keele ejounal from 1878
onwards with a one year embargo & NHS ejournal 1986 onwards with 1 year
embargo].
- Journal of Community Health : New York : Springer US [Available as a Keele ejounal from 1991
onwards & NHS ejournal 1991 onwards with 1 year embargo].
- Journal of Advanced Nursing : Oxford, England : Blackwell Science [Available in print from the Health Library 1994 – 2013
and also as a Keele ejournal 1997 onwards].
- Clinical Risk : London : Sage [Available in print from the Health Library 1996 – 2015
and also as a Keele ejournal 2006 - 2015 & NHS ejournal 2003 – 2014].
- Journal of Midwifery & Women's Health: Chichester: Wiley [[Available in print from the Health Library 2000 – 2013
and as a Keele ejournal 200 onwards]
JOURNAL ARTICLES:
- Christiansen, Dorte M. “Posttraumatic stress disorder in parents following infant death: A systematic review”,Clinical Psychology Review, 2017, Vol.51, pp.60-74 [Available via Keele ejournal]
- Dorte M. Christiansen M.Sc., Miranda Olff Ph.D. and Ask Elklit M.Sc. “Parents bereaved by infant death: sex differences and moderation in PTSD, attachment, coping and social support”, General Hospital Psychiatry, 2014, Vol.36(6), Pages 655-661 [Available via Keele & NHS ejournals]
- Avelin, Pernilla ; Erlandsson, Kerstin ; Hildingsson, Ingegerd et al, “Make the stillborn baby and the loss real for the siblings: parents' advice on how the siblings of a stillborn baby can be supported”, The Journal of perinatal education, 2012, Vol.21(2), pp.90-8 [Available via Keele & NHS ejournals]
- Zhu, Cindy Shiqi ; Tan, Thiam Chye ; Chen, Helen Yu et al, “Threatened miscarriage and depressive and anxiety symptoms among women and partners in early pregnancy”, Journal of Affective Disorders, 2018, Vol.237, pp.1-9 [Available via Keele & NHS ejournals]
- Fry, Jessica T. ; Henner, Natalia, “Neonatal Death in the Emergency Department: When End-of-Life Care Is Needed at the Beginning of Life”, Clinical Pediatric Emergency Medicine, 2016, Vol.17(2), pp.147-155 [Available via Keele & NHS ejournals]
- Capitulo, Leask, Kathleen ; Huang, Leask, Zhaoxia ; Lu, Leask, Xiaosheng, “Should Parents and Families of Stillborn Babies be Encouraged to See, Hold, and Have Funerals for the Babies?”, MCN, The American Journal of Maternal/Child Nursing, 2014, Vol.39(3), pp.146-147 [Available via Keele ejournal]
PATIENT INFORMATION / PATIENT ADVICE:
- NHS website – Dealing with grief and loss - https://www.nhs.uk/conditions/stress-anxiety-depression/dealing-with-grief-and-loss/
- www.nhs.uk – the Health A-Z can be searched for information on various conditions
- NHS Evidence – neonatal death with ‘Information for the public’ filter https://www.evidence.nhs.uk/search?om=%5b%7b%22ety%22:%5b%22Information%20for%20the%20Public%22%5d%7d%5d&q=neonatal%20death&sp=on
- https://www.evidence.nhs.uk/ - the site can also be searched for specific conditions or treatments.
- Patients support tab in the Health Library Mental Health subject links page https://www.keele.ac.uk/healthlibrary/find/subjectlinks/mentalhealth/#tabs-5
- The Lullaby Trust - https://www.lullabytrust.org.uk/about-us/what-we-do/
- Useful contacts - https://www.lullabytrust.org.uk/contact-us/
- Empty Arms Bereavement Support - http://www.emptyarmsbereavement.org/
- Useful contacts - http://www.emptyarmsbereavement.org/contact-empty-arms
CURRENT AWARENESS:
Health Library current awareness service
- Obstetrics and Gynaecology- https://www.netvibes.com/healthlibrary_northstaffs#Obstetrics_%26_Gynaecology
LERC current awareness service
- Neonatology - https://www.protopage.com/pgmclibrary#Neonatology
- Obstetrics and Gynaecology - https://www.protopage.com/pgmclibrary#Obstetrics_&_Gynaecology
- Paediatrics - https://www.protopage.com/pgmclibrary#Pediatrics
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