Baby Loss Awareness Week, 9th - 15th October 2024

Baby Loss Awareness Week takes place every October and provides an opportunity for all those effected by baby loss to come together in remembrance and commemoration.  The campaign also aims to raise awareness of the impact of pregnancy and baby loss and the importance of bereavement support.  Many of the UK’s leading charities involved in Baby Loss Awareness Week also work on driving change and helping to prevent baby deaths and pregnancy loss.

 

RELATED LIBRARY RESOURCES  

The Health Libraries, both at the Royal Stoke and County Hospitals, offer numerous resources related to this topic. In the lists below you’ll find a small selection of items from our collection. To locate these items, simply go to our online catalogue or ask at the counter. This document covers the following resources – books, journals, journal articles and patient information.

 

BOOKS   

• Pregnancy loss and the death of a baby: guidelines for professionals; Hunter, Amanda; Stillbirth & Neonatal Death Charity; 2016; (Tantamount Press); 4th edition.

• Rocker bye baby: life before life, death during life, life after death; Mear, Claire; 2020; (Claire Mear) - part of our Patient Voices Collection.

• A gift of time: continuing your pregnancy when your baby's life expectancy is expected to be brief; Kuebelbeck, Amy; Davis, Deborah L; 2023; (John Hopkins University Press); 2^nd edition.

• When a baby dies: the experience of late miscarriage, stillbirth, and neonatal death; Kohner, Nancy; Henley, Alix; 2001; (Routledge); revised edition.

• The Secret Midwife: life, death and the truth about birth; Secret Midwife; Weitz, Katy; 2020; (John Blake Publishing).

• Pregnancy loss: a guide to what complementary and alternative medicine can offer; Bensouilah, Janetta; 2011; (Radcliffe Pub.).

• Perinatal loss: a handbook for working with women and their families; Broderick, Sheila; Cochrane, Ruth; 2012; (Radcliffe).

• Maternal and Perinatal Death Surveillance and Response: Materials to Support Implementation; 2021; (World Health Organisation); 1st edition – only available as a Keele Open Access e-book.

• Miscarriage; Farquharson, Roy G; 2002 (Mark Allen Publishing Ltd).

• Miscarriage: women's experiences and needs; Moulder, Christine; 2001; (Routledge) Rev. Ed.

JOURNALS   

• Australian nursing & midwifery journal; Australian Nursing & Midwifery Federation - [Available as a Keele e-journal from 2013 onwards, and as a NHS ejournal 1998 onwards].

• Midwifery: an international journal; (Elsevier) - [Available as a Keele e-journal from 1995 & in print at the Health Library from 1985 to 2011].

• British journal of midwifery; (Mark Allen Publishing) - [Available as a Keele e-journal from 2002 onwards & in print at the Health Library from 1993 to 2010].

• BMC pregnancy and childbirth; (BioMed Central); - [Available as an Open Access e-journal from 2001 onwards].

• BJOG: An International Journal of Obstetrics and Gynaecology; Royal College of Obstetricians and Gynaecologists (Great Britain), issuing body; (John Wiley & Sons, Inc) - [Available as a Keele e-journal from 1902 onwards & in print at the Health Library from 2000 to 2013].

• Journal of pregnancy; (Hindawi Pub. Corp.) - [Available as an Open Access e-journal from 2010 onwards].

N.B. NHS members can obtain temporary Keele IT log-ins to view e-journals from the Keele IT suite in the Health Library at Royal Stoke.

Access more journals via our Journals webpage: http://www.keele.ac.uk/healthlibrary/find/journals/  

JOURNAL ARTICLES  

• “Considerations for Practice in Supporting Parental Bereavement in the Neonatal Intensive Care Unit—a Systematic Review”; Lakhani, Jenna; Mack, Cheryl; Kunyk, Diane; Kung, Janice; van Manen, Michael; Journal of Palliative Care, 2024-04, Vol.39 (2), p.138-160; DOI: 10.1177/08258597231158328.

• “Complicated Grief After the Loss of a Baby: A Systematic Review About Risk and Protective Factors for Bereaved Women”; Flach, Katherine ; Gressler, Nathália Gewehr ; Marcolino, Miriam Allein Zago; et al; Trends in Psychology, 2023-12, Vol.31 (4), p.777-811; DOI: 10.1007/s43076-021-00112-z.

• “Bereaved parents involvement in maternity hospital perinatal death review processes: ‘Nobody even thought to ask us anything’”; Helps, Änne; O'Donoghue, Keelin; et al; Health expectations: an international journal of public participation in health care and health policy; 2023-02, Vol.26 (1), p.183-198; DOI: 10.1111/hex.13645.

• “Max's legacy: an evaluation of the impacts of baby loss on staff and families”; Whitehouse, Claire ; Crane, Racheal ; Rostron, Heather; et al; British journal of midwifery, 2023-07, Vol.31 (7), p.368-375; DOI: 10.12968/bjom.2023.31.7.368.

• “Exploring parents' experiences and holistic needs following late miscarriage: a narrative systematic review”; Giannatiempo, Francesca; Hollins Martin, Caroline; et al; Journal of reproductive and infant psychology, 2024-01, p.1-26; DOI: 10.1080/02646838.2023.2297905.

• “Culturally and linguistically diverse men's experiences of support following perinatal death: A qualitative study”; Pearson, Thomas ; Obst, Kate ; Due, Clemence; Journal of clinical nursing, 2023-08, Vol.32 (15-16), p.4586-4598; DOI: 10.1111/jocn.16465.

• “Mothers working to prevent early stillbirth study (MiNESS 20–28): a case–control study protocol”; Heazell, Alexander Edward; Wilkinson, Jack; Morris, R Katie; et al; BMJ open, 2024-01, Vol.14 (1), p.e082835-e082835; DOI: 10.1136/bmjopen-2023-082835.

• “Can single progesterone concentration predict miscarriage in early pregnant women with threatened miscarriage: a systematic review and meta-analysis"; Gong, Yi; Jiang, Tong; Sun, Yang; et al; BMC pregnancy and childbirth, 2024-02, Vol.24 (1), p.133-9, Article 133; DOI: 10.1186/s12884-024-06303-7.

• “A core outcome set for trials in miscarriage management and prevention: An international consensus development study”; Dhillon‐Smith, Rima K; Melo, Pedro; Devall, Adam James; et al; BJOG: an international journal of obstetrics and gynaecology, 2023-10, Vol.130 (11), p.1346-1354; DOI: 10.1111/1471-0528.17484.

• “Stillbirth: prevention and supportive bereavement care”; Atkins, Bethany; Kindinger, Lindsay; Mahindra, Muhammad Pradhiki; et al; BMJ medicine, 2023, Vol.2 (1), p.e000262-e000262; DOI: 10.1136/bmjmed-2022-000262.

N.B. All the above articles are Open Access so are available online to both Keele & NHS users.

PATIENT INFORMATION / PATIENT ADVICE:  

• NHS website:
• Miscarriage - https://www.nhs.uk/conditions/miscarriage/
• Stillbirth - https://www.nhs.uk/conditions/stillbirth/
• Termination for feta anomaly - https://www.nhs.uk/pregnancy/support/termination-for-fetal-anomaly/

• Charities / Further information:
• Sands (Saving babies’ lives. Supporting bereaved families) - https://www.sands.org.uk/
• The Lullaby Trust (Safer sleep for babies, support for families) - https://www.lullabytrust.org.uk/
• Miscarriage Association - https://www.miscarriageassociation.org.uk/
• Tommy’s (The pregnancy and baby charity) - https://www.tommys.org/ 

• Clinical Key – Patient Education Leaflets [Available to UHNM only with Open Athens log-in]:
• Stillbirth - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_070182c0-3e5f-47c9-9b94-03ecfd94d0db
• Miscarriage: what to know - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_72cdff68-aa31-4185-8902-8b9903d25b8b
• Threatened Miscarriage - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_4b921d34-ac0b-4c17-acd0-861de375b279
• How to care for yourself after perinatal loss and vaginal delivery - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_7bc3de79-e28a-4715-a185-dc9a0303035c
• How to care for yourself after perinatal loss and caesarean delivery - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_4a14a4de-b818-4cb0-84d0-b2aff4b5e5fb

KnowledgeShare CURRENT AWARENESS:   

KnowledgeShare Evidence Updates is a personalised current awareness service which sends, straight to your email inbox, new evidence on topics tailored to your requirements and collated by Health Librarians. For more information, or to register for KnowledgeShare please go to https://www.keele.ac.uk/healthlibrary/find/currentawareness/.